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indra santoso's Fundraiser:

My Big Brother's Birthday Tubero Sclerosis Help Fund Gift

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BENEFITING:

indra santoso

THE STORY:

I'm fundraising on behalf of My family which We'll be using for My Big Brother's Birthday Party coming up on this November 10th.

I'm raising money, because I want to make him happy! He has been suffering a lot from a rare disease called Tuberous sclerosis, and I want to at least reduce his suffering by throwing a big party for him. Playing some music (he likes listening to music). Inviting family members, neighbors, and every single person that still cares for him. And letting him know that we are!

For your information, Tuberous sclerosis is a rare multi-system genetic disease that causes non-malignant tumors to grow in the brain and on other vital organs such as the kidneys, heart, eyes, lungs, and skin. A combination of symptoms may include seizures, developmental delay, behavioral problems, skin abnormalities, lung and kidney disease. (source: wikipedia)

The disease does not have a cure, but symptoms, like epilepsy can be reduced through drugs that he needs to take three times a day, usually before each meal.

The disease start to show signs when he's still just a 6 year old kid. He's turning 37 on November 10th this year. The disease is eating him every year, and getting worse. All We can do, only to reduce his suffering by taking care of him everyday. That's why We want something special this year!

Your donation can help in so many ways, mainly reducing drugs or medical expenses, etc.

Thank you very much for your support to help. Your donation truly means so much to both myself personally, my family, and of course, to My Big Brother.

Help me help my big brother, and may God Bless You All!

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