BENEFITING: Transverse Myelitis Association
EVENT DATE: Sep 20, 2015
Yes, I'm passionate about this event and this cause. Here’s my story. For 17 years, my doctors failed to take seriously neurological deficits that were eventually found to be Transverse Myelitis--a damaged section in my cervical spinal cord that causes difficulty with walking, among other things. Not only was I deprived of treatment that might have averted my now permanent deficits, but also the dignity and respect that everyone deserves when they are sick and struggling. I believe that lack of awareness of TM, especially in the medical community, directly affects the quality of life of those of us living with TM. My main mission for this fundraiser is to raise awareness that TM exists so that when anyone has unexplained neurological problems, TM is always considered. Another purpose is to address the isolation and loneliness that TM brings --to patients, caregivers, family and friends. TM is rare. There are no movie-star spokepeople. But by participating in this annual fundraiser--by walking, running, rolling or donating--we discover we don’t have to be alone. Finally, I'm passionate about raising funds for the Transverse Myelitis Association (TMA), a wonderful resource with services for patients, caregivers and families. It is often the first place we turn when we learn we have TM. TMA's mission is to support and advocate for individuals and their families diagnosed with TM and other rare neuroimmunologic disorders. They do it very well. Please consider a generous donation.