Maria Cataldo wrote -
June is Hydranencephaly Awareness Month,
Our Family would like to help the Global Hydranencephaly Foundation grow. They have been a God send for us. When doctors kept telling us your child will not live, walk or talk I spent days in and days out searching for help on the internet. Finally when Natalia was 6 months old I came upon the Hydranencephaly website, I was super excited! I felt like we weren't alone anymore I felt that Natalia did have a chance at life and that we were going to be ok. Because of the Hydranencephaly Foundation hope was alive. There is no way to describe the feeling of relief that we were not alone anymore. There were actually other children with Natalia's condition and prognosis. Needless to say, it is our privilege to say thank you and raise awareness so other families can have the same hope and not feel alone anymore.