This is why I love my brother. Shaved his head in support. So crazy he was gonna shave his eyebrows off too.
September 23, 2016
BENEFITING: NATIONAL ALOPECIA AREATA FOUNDATION
ORGANIZER: NATIONAL ALOPECIA AREATA FOUNDATION
EVENT DATE: Sep 14, 2016
To My Friends and Family,
Thank you for respecting my privacy these past few years and not asking too many questions. It has been difficult adjusting to this and you have all been very supportive by not making it a big deal. I thank you for that.....here it is.
I have had Alopecia since April 2014. What started as a small spot the size of a dime on the back of my head has now spread everywhere. I have no hair left on my head, eyebrows, eyelashes and most of body.
I have tried every treatment there is, mostly they hurt and did nothing. About a year ago I quit medical treatments and focused on taking care of myself. This is why I became a vegetarian and started juicing a lot. Recently I have been excercising more and trying to be more balanced in life as a whole.
The hardest part is the feeling that you lose part of your identity and who you are. Fortunately those closest to me have been there to keep me positive and help me get through this. My wife Marisa has been amazing and doesn't let me get down on myself. Her love and support has helped so much and I am forever grateful that she looks at me the same way she always has.
What I have learned through all this is to focus on what I have to be thankful for in my life instead of what I don't have....my hair. I have a beautiful wife who loves me, a home, my health and wonderful friends and family around me. I am so fortunate and chose to focus on how lucky I am for all those things.
I chose to participate in this fundraiser because I want to help the younger people dealing with Alopecia in whatever way I can and find a cure. I couldn't imagine trying to grow up dealing with this or even as a young man. What it does to you emotionally and mentally can be tough.
Please spare a few dollars if you can and share, tweet, repost, email this link to your friends. Anything is appreciated.
Thank you Marisa. I love you.
NATIONAL ALOPECIA AREATA FOUNDATION wrote -
Beginning September 14th and running through October 26th, in celebration of Alopecia Areata Awareness Month, NAAF is part of the Revlon Love 2016 Challenge!
This Challenge is a six-week fundraising competition launched by Revlon where organizations that support health causes compete for cash prize donations from Revlon. Over $1.4 Million will be given away in prize money to organizations participating in the Challenge. We're ready to raise as much money as we can! In addition, if we hit $50,000 by October 5th, we will be flown to NYC to pitch a collaboration between NAAF and Revlon to raise awareness and generate more funds.
Through this campaign, we have an opportunity to make a real impact in the lives of all those living with alopecia areata and their loved ones! Share your stories, your pictures and your videos! Together we can reduce the stigma of living with visible difference, increase awareness and raise funds for NAAF's programs of support, education and research for a cure.
Each week, we will award: 1) the fundraiser who has raised the most funds for that week, 2) the best photo submitted and posted and 3)the best video submitted and posted! Some of the super cool prizes will include:
- Invitation to be photographed by Rankin in NYC Oct 30th
- Skype meeting with one of NAAF’s top researchers
- Free Conference Registration for 2 in Miami, June 2017
- Hats and T-Shirts from AA Apparel
- Signed copy of Head On, Stories of Alopecia Areata by Deeann Callis Graham
- Invitation to attend NAAF Research Summit in NYC November 14&15, 2016
Through this Campaign, it is our goal all touched by it will come to see us…as we are on the inside.