Thank you for supporting the NSCF OC Marathon Team!
March 21, 2017
BENEFITING: National Stem Cell Foundation
EVENT DATE: May 07, 2017
DAY TO GO
The National Stem Cell Foundation (NSCF) supports peer-reviewed research and clinical trial collaborations in the field of adult stem cell and regenerative medicine technologies in four primary focus areas:
- Neurodegenerative Disease
- Autoimmune Disease
- Regenerative Repair
- Rare Childhood Disorders
You can check out what we fund by clicking here.
NSCF is unique in that we are not affiliated with any specific educational institution or disease/disorder. This kind of flexibility allows us to choose the most promising research no matter where it's happening. It also lets us focus on "platforms" of research - that means we can choose to fund research with the potential to have a broad impact across a spectrum of diseases and disorders.
In addition to funding the most promising research, we support education and patient advocacy programs to inspire the next generation of innovative scientists, accelerate access to scientific breakthroughs and connect people to cutting-edge therapies now.
Patient Assistance Fund: Providing support for clinical trial participation
At the center of all medical innovation is the patient who participates in a clinical trial to test a new therapy or research discovery. While we learn more about costs not already covered by other foundations or funds, we’ve selected the Pediatric Blood and Bone Marrow Transplant Program (PBMT) at Duke University - the largest such center in the country – as our beta site for need-based testing in 2017 and 2018. Children in need of specialized medical care or looking for access to potentially life-changing clinical trials travel from all over the U.S. and around the world to PBMT. After careful consideration, NSCF has established a grant program to cover insurance deductibles and co-pays for insured U.S. families with a child (or children) eligible to participate in a clinical trial when those out-of-pocket expenses are beyond reach – and exclude their children from trial participation. These are children with no other treatment options.
S.A.M. - Sharing America’s Marrow: 24,000 everyday heroes...and counting
In 2015, we co-funded the cross-country road-trip of Alex Kimura, Sam Kimura and Taylor Shorten, founders of Sharing America’s Marrow (S.A.M.). Sam Kimura was diagnosed with a rare blood disorder at age 17 and will eventually need a bone marrow transplant – with no donor match in her family or on the National Marrow Donor Program registry. With kits donated by Delete Blood Cancer, the three of them traveled to college campuses in all 50 states, registered over 24,000 new bone marrow donors and found 342 matches for patients on a transplant waiting list. We committed to funding S.A.M.’s operations in 2016 and 2017 to cover Alex Kimura’s plans to organize 100+ national satellite events, document their journey with film and run a continuous online bone marrow registration campaign. S.A.M. wil be swabbing at the OC Marathon - be sure to get swabbed! Learn about S.A.M.'s journey by clicking here.
National STEM Cell Foundation Scholars: Grow your own scientist
Research shows that children in this age group who become excited about science are the ones who will pursue STEM courses in high school and major in STEM subjects at the college level. NSCF is partnering with The Carol Martin Gatton Academy of Mathematics and Science and The Center for Gifted Studies at Western Kentucky University to provide advanced training for the teachers of aspiring middle-school scientists nationwide. The National STEM Cell Foundation Scholars Program will provide best-in-class access to thought leaders in STEM education for 10 middle-school science teachers selected annually from a national pool of applicants. Invited speakers drawn from STEM educators and innovators nationwide will participate in the hands-on development of collaborative projects for classroom implementation. Scholars will also receive a Chromebook to facilitate collaboration after graduation, a stipend for technology/supplies to complete a classroom challenge project and sponsored attendance at the National Science Teacher Association Conference.
If you'd like to learn more about NSCF, just ask! You can email us by clicking here.