BENEFITING: National Blood Clot Alliance
ORGANIZER: National Blood Clot Alliance
1 person will die every 6 minutes in the US due to a blood clot. 274 people in the US will die every day due to a blood clot.
Not even a year ago (08/2016), I suffered a massive bilateral pulmonary embolism, (having a clot in both of my lungs). The PE resulted in 4 days in the hospital, 3 of which were in the ICU – as it had caused hemodynamic instability – meaning my blood flow was compromised, and caused high pressure on my heart, so I had to have TPA administered, a potentially dangerous yet helpful clot dissolver, which is only used for very critical matters such as strokes or massive PE’s.
Anyways, enough medical talk. I’ll keep this short and sweet for you wonderful supporters. Basically I was 33, in great shape, and have never had one spot on my medical record prior to this. Still to this day, I still wonder exactly what put me over the edge, but with my doctor’s help, pieced together an out-of-town injury a few weeks before the race, with addition of a long car ride home resulted in deep-vein-thrombosis - then add in an unknown factor-five blood-clotting gene, birth-control pills and de-hydration from a 6 hour triathlon, and you have a storm. No one thought it was a clot, because I was “too young and fit”. If I would’ve had more education and awareness, I could’ve been preventative in solving the issue, or proactive in catching it prior to the passing out and lovely ambulance commute, and saved myself from – well let’s be honest, near death, and thousands in medical bills (just to give you an idea –almost $70,000 in medical bills – thanks to insurance I owed only a small fraction of the cost). Today I am now on blood thinners, and have frequent paranoia, but otherwise am healthy - the message I took away was to not ignore the signs, and to stay active - my doctors said my healthy lifestyle kept me from losing my life to something many others had lost it to.
NY Marathon has always been a dream. And to be able to run it after encountering so many medical issues is just something I am grateful to have the option for. But in doing this, raising funds to support a national organization who can lend that needed prevention and education piece to reduce the death and illness rate – I wouldn’t have it any other way.
See some of their goals below – and I challenge you to learn more about clotting disorders and diseases so you can also take part in the prevention and education.
I truly thank you for taking the time and some extra dollars out of your wallet to put towards this cause. - Kelly
- Prevent thrombosis and its complications.
- Reduce death and illness related to thrombosis.
- Assist in establishing guidelines for prevention, treatment, and management of blood clots.
- Promote funding for and establishment of comprehensive thrombophilia programs to allow every patient access to thrombosis specialists within a reasonable distance where patients live.
- Promote and assist scientists with research efforts relating to all aspects of thrombosis and thrombophilia.
- Encourage activities to increase the number of specialists in thrombosis and thrombophilia, such as endowing training fellowships.
- Initiate and promote educational activities for the medical and patient community, and for the public.
- Create a national policy agenda and a grassroots advocacy network.