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Elizabeth DeMarco's Fundraiser:

Running for Rare - NYC Marathon 2017

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Elizabeth DeMarco

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services.  Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

The Team: $12,532 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

trish pickford

Amount Raised

$4,635

 

155% Raised of $3,000 Goal

Fundraiser Title

Mary Kitlowski

Amount Raised

$2,205

 

74% Raised of $3,000 Goal

Fundraiser Title

Jessica Chambers

Amount Raised

$1,901

 

63% Raised of $3,000 Goal

Fundraiser Title

Stuart Fisher

Amount Raised

$1,041

Fundraiser Title

Ross Martin

Amount Raised

$920

 

31% Raised of $3,000 Goal

Fundraiser Title

Brittany Hoffmann

Amount Raised

$870

 

29% Raised of $3,000 Goal

Fundraiser Title

Jeremy Irons

Amount Raised

$395

 

13% Raised of $3,000 Goal

Fundraiser Title

Tammy Lively Thomas

Amount Raised

$225

 

8% Raised of $3,000 Goal

Donor Comments

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