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Tammy Lively Thomas' Fundraiser:

Running for Rare - NYC Marathon 2017

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Tammy Lively Thomas

THE STORY:

On November 5th I will be running the New York City Marathon to raise money and awareness for the National Organization for Rare Disorders. I will also be running in honor of an amazing young man whom I am very fortunate to parnter with for this cause. Although this will be my 11th marathon, it is my first after being dianosed with Vascular Ehlers Danlos Syndrome. Vascular EDS is an inherited connective tissue disorder that causes aneurysms, arterial disscstions and ruptures, as well as spontaneous organ rupture. I was blessed to have the resources to seek out some of the best doctors at one of the greatest hospitals in the world for diagnosis and treatment. Not all in the rare community have those same resources. I will be running to raise money for NORD's undiagnosed disease program. Like myself, most patients diagnosed with rare diseases are told there are no FDA approved treatments for their disease. The words I hear so frequently from my doctors are "I don't know" and "There is no research". Please support me in my effort make a difference.

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD). NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children. On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease. The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH). Donations in support of this campaign will be tax-deductible to the extent permitted by law. For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities. The individuals and families helped by NORD often have nowhere else to turn for assistance. Your support of this campaign is very important to them.

$3,000

MONEY RAISED
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  • Sarah and Channing

    $25

  • Marilyn & Bernie Mason

    $100

  • Zach, Leslie, Jackson, and Adam

    $100

  • Matt Hensley

    $100

  • Lorna Reed

    $20

  • Evan Condee

    $50

  • Sue & Ed

    $50

  • Greg Thomas

     

  • Cindy Smith

     

  • Bill Vance

    $50

  • Nate, Pennie, Natalie, and Brooklyn

    $100

  • Don & Michelle

     

  • Corey Kennard

    $50

  • Rachel Cordle

    $100

  • Mitch Thomas

     

  • Mary (Grace) Snyder

     

  • Lee Gifford

    $25

  • Wayne Lively

    $500

  • Zach, Logan, Tina & Jason

    $100

  • Richard, Shona & Reece Lively

    $100

  • Fannin family

    $100

  • Jill and Gregg Moore

     

  • Alisha Faulkner

    $50

  • Tammy Lively Thomas

    $1,150

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100% Raised of $3,000 Goal

The Team: $34,257 TOTAL RAISED SO FAR

Fundraiser Title

trish pickford

Amount Raised

$4,735

 

158% Raised of $3,000 Goal

Fundraiser Title

Jessica Chambers

Amount Raised

$3,376

 

113% Raised of $3,000 Goal

Fundraiser Title

Ross Martin

Amount Raised

$3,055

 

102% Raised of $3,000 Goal

Fundraiser Title

Brittany Hoffmann

Amount Raised

$3,015

 

101% Raised of $3,000 Goal

Fundraiser Title

Mary Kitlowski

Amount Raised

$3,000

 

100% Raised of $3,000 Goal

Fundraiser Title

Jeremy Irons

Amount Raised

$3,000

 

100% Raised of $3,000 Goal

Fundraiser Title

Tammy Lively Thomas

Amount Raised

$3,000

 

100% Raised of $3,000 Goal

Fundraiser Title

Mike Smith

Amount Raised

$3,000

 

100% Raised of $3,000 Goal

Donor Comments

Tammy Lively Thomas

Tammy Lively Thomas

DONATION: $1,150

5 months ago

Alisha Faulkner

Alisha Faulkner

DONATION: $50

6 months ago

Jill and Gregg Moore

Jill and Gregg Moore

6 months ago

Fannin family

Fannin family

DONATION: $100

Go Tammy Go! 6 months ago

Richard, Shona & Reece Lively

Richard, Shona & Reece Lively

DONATION: $100

Tribute to Tammy Thomas 6 months ago

Zach, Logan, Tina & Jason

Zach, Logan, Tina & Jason

DONATION: $100

You are making a difference!! 6 months ago

Wayne Lively

Wayne Lively

DONATION: $500

6 months ago

Lee Gifford

Lee Gifford

DONATION: $25

In Tribute of all those affected.... 6 months ago

Mary (Grace) Snyder

Mary (Grace) Snyder

To a wonderful young woman!1 6 months ago

Mitch Thomas

Mitch Thomas

6 months ago