BENEFITING: NAYELI FAITH FOUNDATION
ORGANIZER: NAYELI FAITH FOUNDATION
EVENT DATE: Jun 16, 2013
My daughter, Karoline Faith is a Congenital Diaphragmatic Hernia SURVIVOR.
Congenital Diaphragmatic Hernia is a birth defect of the diaphragm (the muscle that separates the thoracic organs from the abdominal organs). At 10 weeks of gestation, Karoline's diaphragm didn't fully develop causing her stomach, intestines, spleen, and liver to shift through a big hole in the diaphragm inhibiting the growth and development of her left lung.
She was diagnosed at birth and it was a complete surprise! Karoline had surgery to repair her diaphragm at 5 days old at UCSF Benioff Children's Hospital. She was intubated and was on machines to help her breathe for four (4) weeks. Karoline missed the opportunity to learn how to eat and had difficulty eating/drinking milk; thus, she had a feeding tube to help her grow and thrive. She spent her first three (3) months of life in intensive care at UCSF and Kaiser Walnut Creek.
At three (3) months old, Karoline finally came home! She came home on a Naso-Gastric (NG) feeding tube and later had surgery to place a Gastrostomy Tube (G-Tube) in her stomach. We see her pediatrician, surgeon, gastroenterologist, physical therapist, eating therapist, and dietitian regularly.
Karoline Faith is active, sociable, fearless, spirited, strong, compassionate, very loving, and very beautiful. She is proof God is Great!
No baby, child, or family should go through this. Please join me and help raise awareness.
I'm running a half-marathon in June because I want to do something about this. And I need your help!
Please support my run. Making a secure donation is easy: just click the 'DONATE' button on this page. Thank you for helping me give babies a healthy start!
NAYELI FAITH FOUNDATION wrote –
The Nayeli Faith Foundation was created by the parents of Nayeli Faith, a Congenital Diaphragmatic Hernia (CDH) survivor. The NFF assists families facing a CDH diagnosis. This assistance is provided in various ways, to include gas and food cards, parking, etc. The NFF primarily focuses on families attending the University of San Francisco Medical Center, as they have a CDH research program there. The NFF also provides funds to the UCSF CDH research program in hopes of a cure and/or a better way of dealing with CDH.
The Nayeli Faith Foundation is a 501(c)(3) non-profit, federal ID 80-0417228.