Skip to content

NF Network

NF Network
CROWDRISE : Sep 04, 2012
Tax ID: 04-3030760
BASED: Wheaton, IL, United States

CHARITY WEBSITE: www.nfnetwork.org

NF Advocacy & Community

The Mission of the NF Network is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.

The Neurofibromatosis Network:

  • Promotes federal funding of neurofibromatosis research through the development of a grass roots advocacy program. 
  • Grassroot advocates are individuals affected by NF in some way and work with their federal government representatives to promote the funding of NF research;
  • Works closely with members of the House and Senate to seek increased funding for research through the National Institutes of Health (NIH) and through the Department of Defense Congressionally Directed Medical Research Program (CDMRP);
  • Distributes medical and research updates;
  • Invests in the financial and promotional support of NF research;
  • Supports Camp New Friends, an annual NF Children’s camp;
  • Sponsors educational programs for families affected by NF;
  • Serves as a national referral database for NF clinical care;
  • Assists in developing local NF groups;

 

The NF Network network provides opportunities for local NF organizations to share experiences.  The network is a dynamic and growing open space for shared resources, development of new tools, and creation of innovative programs.  It brings together groups from around the country to speak as one voice on national issues.

Tax ID: 04-3030760 • www.nfnetwork.org

Fundraisers

2017 Chicago Marathon

2017 Chicago Marathon

Amount Raised:

$0

 

0% Raised of $3,000 Goal

2016 Chicago Marathon Run4NF & the Network

2016 Chicago Marathon Run4NF…

Amount Raised:

$0

 

0% Raised of $5,000 Goal

2015 Chicago Marathon Run4NF & the Network

2015 Chicago Marathon Run4NF…

Amount Raised:

$0

 

0% Raised of $7,500 Goal

A Race for Grace

A Race for Grace

Amount Raised:

$885

 

44% Raised of $2,000 Goal