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Improving the Lives of People with Neurofibromatosis Tax ID 22-2580173


Neurofibromatosis Midwest is dedicated to the increasing number of men, women and children challenged by neurofibromatosis. We’ve been a nonprofit 501(c)3 since 1982 and are committed to improving the lives of children, adults, and families impacted by neurofibromatosis. Our continued focus and foundation is on Clinics, Awareness, Research, Education and Support (CARES).

Our service area includes Illinois, Wisconsin, Indiana, Iowa, Kentucky and the eastern half of Missouri.

In the beginning years, very little was known about neurofibromatosis. There were no clinics, research, educational material or systems of support.  But the tenacity and strength of these original NF families laid the groundwork to become a part of a great collaboration which led to monumental progress in care, awareness, research, education and support.

Today, because of their foresight and the hard work and dedication of thousands of families and volunteers across our area, NF Midwest is the only local/regional organization offering care, support and hope to NF adults, children and families.

We are dependent on funds raised by special events, foundations and individual donations. Support us in the fight against neurofibromatosis by visiting our Get Involved page or Donation page.