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Nevaeh's trip to Texas Children's Hospital

Organized by: Sandra D Field

Sandra D's Photo
 

We will continue to research and begin agressive therapy for speech, occupational and therapy to stimulate and repress that gene! Gods loving arms around us will pull us through! Thank you all for our support! We ❤️ You all!
September 22, 2016

THE STORY:

My grandbaby Nevaeh was just recently diagnosed with Rett's Syndrome. This neurological disorder affects only girls and it is about 1 in 10,000 - 15,000 that are affected. They are still researching as there is no cure. Nevaeh is 19 months old and still does not walk or crawl which led the doctors to additional testing and the genetic testing revealed the presence of the MECP2 gene that is compatible with the diagnosis of Rett's. We are traveling to Houston, Texas at Texas Children's Hospital to meet with the Pediatric Neurologist (Dr. Daniel Glaze) who is a specialist in this disorder. We were blessed to be able to have this opportunity dated September 19, 2016. Sometimes it can take up to a year to be seen since this disorder is so rare and he sees generally 300-400 girls a year. My son Jarrad is the only one able to work at this time since his wife is the primary caregiver for Nevaeh as she takes her to therapy at least 4 times a week to help with her motor skills and physical therapy to help strengthen her legs. As a family, we are taking care of each other in faith and love for one another but the struggle to collect funds to help us with the trip is great. We appreciate any help. This is a first for us to have to ask for help. Please keep Nevaeh and our family in your prayers and God bless everyone. Thank you so much! Sandra D Field

DONATE

To This Fundraiser

$770

 

51% Raised of $1,500 Goal

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  • Dawkins

    $100

  • Kelly Lievsay Franke

    $75

  • Christie Oliver

    $25

  • Rita D

    $25

  • Paula Provencio

    $25

  • Joseph, Melanie, Emilio, and Conor Provencio

    $100

  • Glen and Rita

    $50

  • Teresa Provencio Boberg

    $100

  • Patrick, Cindy, Joaquin Aguilar

    $25

  • Joyce and Charlie

    $25

  • Nancy McDermott Tompkins

    $100

  • Rudy Youngblood and kids

    $120

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Organized by

Sandra D Field

This is a direct to organizer fundraiser.

Donor Comments

Rudy Youngblood and kids

Rudy Youngblood and kids

DONATION: $120

11 months ago

Nancy McDermott Tompkins

Nancy McDermott Tompkins

DONATION: $100

11 months ago

Joyce and Charlie

Joyce and Charlie

DONATION: $25

11 months ago

Patrick, Cindy, Joaquin Aguilar

Patrick, Cindy, Joaquin Aguilar

DONATION: $25

11 months ago

Teresa Provencio Boberg

Teresa Provencio Boberg

DONATION: $100

For our little princess going to Houston 11 months ago

Glen and Rita

Glen and Rita

DONATION: $50

11 months ago

Joseph, Melanie, Emilio, and Conor Provencio

Joseph, Melanie, Emilio, and Conor Provencio

DONATION: $100

We love guys and hold you in our prayers! 11 months ago

Paula Provencio

Paula Provencio

DONATION: $25

For the darling, beautiful, happy Nevaeh!! 11 months ago

Rita D

Rita D

DONATION: $25

Prayers for Nevaeh 11 months ago

Christie Oliver

Christie Oliver

DONATION: $25

11 months ago

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