BENEFITING: Children's Tumor Foundation
ORGANIZER: Children's Tumor Foundation
EVENT DATE: Mar 20, 2016
Children's Tumor Foundation wrote -
The Children's Tumor Foundation's NF Endurance Team is running the 2016 United Airlines NYC Half to end NF through research.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.
There is currently no effective treatments nor a cure, but you can help! Support our team today!
Click on the DONATE button to contribute what you can on behalf of me.