BENEFITING: Neurofibromatosis Incorporated Northeast
ORGANIZER: Neurofibromatosis Incorporated Northeast
EVENT: Boston Marathon 2014
On April 21st I am going to be running in my sixth Boston Marathon to raise money for NF Inc. Northeast. The mission of Neurofibromatosis, Inc., Northeast is to find the cure for NF by promoting scientific research, creating awareness, and supporting those who are affected by NF. This is a cause that is very close to my heart because, as many of you already know, my oldest son Max is living with this disorder.
Max is a remarkable person that has lived his entire life with a disorder that has created many obstacles for him. He has some learning disabilities but he works so hard that he consistently makes the honors list at school. He has fine motor skill issues that make it very difficult for him to hand write his school work so that it can be read. So, instead, he has taught himself to type on a keyboard faster than most adults.
As a parent it is very rewarding and inspiring to see Max have successes in these areas but it is also heartbreaking to see how difficult the road is that he travels every day. I can't even imagine how tiring it must be to live in his skin. So this is why I am challenging myself to raise more money and run the marathon faster than I have before. My goal is to raise $5,000 and finish in under 5 hours. (For some perspective my other finishes were 5:55:21, 5:21:29, 5:33:20 and 6:03:42 in the blistering heat in 2012)
Last year I was unable to finish due to the tragic events that unfolded at the finish line. The one thing that last year taught me is that life is very short and extremely fragile. You never have as much time on this earth as you think you do so you should embrace every moment. Last year I didn't work very hard to train or, more importantly, to fundraise. This year WILL BE DIFFERENT. I owe it to Max and to every person out there that is suffering with NF. I am lucky that I don't have to face the difficulties that those that suffer from NF do so I feel it is the very least I can do to work hard at fundraising so Max doesn't have to work hard at just living his life.
Please help me reach and exceed these goals by donating any amount of money that you can. Every little bit helps.
If you'd like to donate you can do so below with your credit card. If you'd like to donate by check please send a check payable to NF Inc. Northeast to 9 Bedford St, Burlington, MA 01803
Want to check in on Max? Go to: www.caringbridge.org/visit/maxwellearle
Visit my blog at runningformax.blogspot.com
Neurofibromatosis Incorporated Northeast wrote -
This will be the 25th year that Neurofibromatosis Northeast has had a team running in the Boston Marathon. Funds raised will support our mission to find treatments and the cure for neurofibromatosis by promoting scientific research, creating awareness, and providing hope and support to those who are affected by NF. Neurofibromatosis affects one in 2,500 people.
Come join our team and help provide a brighter future for the children who live with this unpredictable tumor disorder.
- See more at: http://www.crowdrise.com/teamneurofibromatosisnortheast/fundraiser/scottday#sthash.BXpzfyOs.dpuf