BENEFITING: Neurofibromatosis Incorporated Northeast
ORGANIZER: Neurofibromatosis Incorporated Northeast
EVENT: 2015 Boston Marathon
Thanks for visiting my page! I'm honored to be running the 2015 Boston Marathon for Team NF in memory of my cousin, Amanda Witzig.
Amanda was 23 years old when she passed away in August. She battled Neurofibromatosis throughout her entire life and was a two-time brain tumor survivor (not to mention a UNH grad, loving daughter to Bill and Joanne, great big sister to Sarah and Matthew, and best friend to yellow lab Molly) before developing complications from a brain stem glioma. I think I can speak for my entire family in saying we have never seen bravery like we saw in that hospital room, with Amanda smiling and giving us thumbs up every single day she was there.
It is a testament to Amanda's strength and endlessly optimistic attitude that I grew up not knowing how serious NF is – that it is a genetic disorder that causes tumors to form on nerves throughout the body (in her case, in the brain), that it affects more than 2 million people worldwide. But now that I do, I want to do what I can to help – to try to keep other families from having to say goodbye so soon.
That's why I'm raising money for Neurofibromatosis Incorporated Northeast, a 501c3 organization that supports NF research and awareness, and resources for families. It spends 81 percent of its annual revenue on programs. Among other projects, NF Northeast supports the Harvard Medical School Center for NF and Allied Diseases, which is currently working on finding a cure.
Running 26.2 miles is something I have to do on my own, but meeting (and hopefully exceeding!) my goal to raise $5,000 for NF Northeast is something I can only do with your help. I appreciate you taking the time to read this, and for giving what you can to this cause. Let's do it for Amanda!