National Fragile X Foundation


Earn Double Crowdrise Points when you Fundraise or Give to this Featured Charity. If you don't get how great Double Points is, please ask someone smarter than you or email us and we'll solve everything.

National Fragile X Foundation
Tax ID: 84-0960471
BASED: Washington, DC, United States


Our Mission

The National Fragile X Foundation unites the Fragile X community to:

If you're as passionate about our cause as we are, it'd be amazing if you created a fundraiser on CrowdRise to raise money for our Charity. CrowdRise makes it super easy and fun, and your support is invaluable to our mission. Consider giving up your next birthday by asking for donations instead of gifts. Or run a marathon and ask your friends to sponsor you. We love getting donations but there's nothing better than when you go a step further and help us raise money from your network of friends. Lots of little donations really do add up. The power of the crowd is real. Please create a fundraiser and help us make a real-life difference for this incredibly important cause.

Tax ID: 84-0960471 •
  • Anything

    You will do anything for your child.
    What is the anything you will do for Fragile X?

    Start Your Fundraiser
  • Impact

    Someone you know lives with Fragile X.
    What is the anything you will do to make an impact for Fragile X?

    Start Your Fundraiser
  • Community

    Community is about supporting a family’s Fragile X journey.
    What is the anything you will do to help support your community?

    Start Your Fundraiser
  • Awareness

    Through awareness, we can promote inclusion, education and research. What is the anything you will do to raise awareness of Fragile X?

    Start Your Fundraiser
  • Love

    What do you love to do?
    Do what you love for Fragile X!

    Start Your Fundraiser
  • Fun

    Put FUN in fundraiser by doing #AnythingforFragileX

    Start Your Fundraiser

About the National Fragile X Foundation

The mission of the National Fragile X Foundation is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure. We do that through:

  • Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.
  • Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.
  • Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Together, We’re Stronger. ×


The National Fragile X Foundation (NFXF) serves those living with Fragile X by Fostering Community, Raising Awareness, and Funding Research. Here are some of the ways we do that:

  • 47 Community Support Network groups in 39 states provide vital support for families.
  • 262 local events to foster a strong community, raise awareness and educate families and professionals.
  • 180 advocates met with 60 Senators and 83 Representatives in Congress in March 2017 to support awareness, research, and support for families.
  • The NFXF BioBank™ is the first biobank for Fragile X and drives faster and more cost-effective research into treatments and eventual cures for the family of Fragile X disorders.
  • 12 free, educational webinars planned for 2017.


Step 1: Do Anything

You can register and personalize your fundraiser in a matter of minutes. Add stories and videos about why you’re raising money for the Fragile X.

Step 2: Spread the word

Ask your friends and family to help those living with Fragile X by supporting your fundraiser. You can even start the ball rolling by donating yourself.

Step 3: Inspire Others

Anyone can do anything. Inspire others to do anything for Fragile X by sharing how easy and fun it is.


Want to get involved? It'd be amazing if you created a fundraiser for our charity and helped us raise money. Create a Fundraiser