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National Fragile X Foundation


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National Fragile X Foundation
Tax ID: 84-0960471
BASED: Washington, DC, United States


Our Mission

The National Fragile X Foundation unites the Fragile X community to:

  •     Enrich lives through educational and emotional support
  •     Promote public and professional awareness
  •     Advance research toward improved treatments and a cure for Fragile X.

Tax ID: 84-0960471 •
  • Anything

    You will do anything for your child.
    What is the anything you will do for Fragile X?

    Start Your Fundraiser
  • Impact

    Someone you know lives with Fragile X.
    What is the anything you will do to make an impact for Fragile X?

    Start Your Fundraiser
  • Community

    Community is about supporting a family’s Fragile X journey.
    What is the anything you will do to help support your community?

    Start Your Fundraiser
  • Awareness

    Through awareness, we can promote inclusion, education and research. What is the anything you will do to raise awareness of Fragile X?

    Start Your Fundraiser
  • Love

    What do you love to do?
    Do what you love for Fragile X!

    Start Your Fundraiser
  • Fun

    Put FUN in fundraiser by doing #AnythingforFragileX

    Start Your Fundraiser

About the National Fragile X Foundation

The mission of the National Fragile X Foundation is to provide unwavering support for every family affected by Fragile X, while relentlessly pursuing a cure. We do that through:

  • Community – To assist and educate individuals and families living with Fragile X in all stages of life, through outreach and personal support.
  • Awareness – To increase public and professional awareness of Fragile X to influence public policy, support legislative advocacy, and increase funding for research.
  • Research – To fund and facilitate research that drives scientific and medical advances toward effective treatments and a cure.

Together, We’re Stronger. ×


The National Fragile X Foundation (NFXF) serves those living with Fragile X by Fostering Community, Raising Awareness, and Funding Research. Here are some of the ways we do that:

  • 47 Community Support Network groups in 39 states provide vital support for families.
  • 262 local events to foster a strong community, raise awareness and educate families and professionals.
  • 180 advocates met with 60 Senators and 83 Representatives in Congress in March 2017 to support awareness, research, and support for families.
  • The NFXF BioBank™ is the first biobank for Fragile X and drives faster and more cost-effective research into treatments and eventual cures for the family of Fragile X disorders.
  • 12 free, educational webinars planned for 2017.


Step 1: Do Anything

You can register and personalize your fundraiser in a matter of minutes. Add stories and videos about why you’re raising money for the Fragile X.

Step 2: Spread the word

Ask your friends and family to help those living with Fragile X by supporting your fundraiser. You can even start the ball rolling by donating yourself.

Step 3: Inspire Others

Anyone can do anything. Inspire others to do anything for Fragile X by sharing how easy and fun it is.


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