We climbed to the top, with your support!
June 04, 2018
Most of you, our family, friends, colleagues and/or students, know our son Joaquin's story. As a child born with Fragile X Syndrome, he has faced many challenges. He has also continued to make us proud us with his determination and drive to learn, love, and to live life to the fullest.
Through his own hard work and the support of you and many other good people, he is a happy thriving child. One such support for us,The National Fragile X Foundation, provides resources, services, and support for research worldwide on Fragile X Syndrome and related conditions.
In support of the NFXF's fundraising efforts this month during Fragile X Awareness Month, we are participating as a team in the NFXF Let ’Em Know 5K race. Basically, this means that across the country people like us will be completing a 5K anywhere, anytime beginning July 1 and ending on July 31, 2013. We will be completing the 5K alongside other Southern California Fragile X families on July 28th, 2013.
In return, we ask that you donate as much via this fundraising page as you feel inspired to, and/or pass the word on to others. Any amount is appreciated and very helpful.
Nick Henning and Maria Scremin
Want more great news? Your donation will be doubled!!
Thanks to a very generous one-time challenge opportunity, every dollar you donate to our effort in the NFXF Let ’Em Know 5K event for National Fragile X Awareness month will be matched dollar for dollar up $25,000!!*
Also, all donations benefiting the NFXF on the Crowdrise website are tax-deductible!