Dear family, friends, colleagues and students,
Most of you know our son Joaquin's story. As a child born with Fragile X Syndrome, he has faced many challenges. He also makes us proud us with his determination and drive to learn, love, and to live life to the fullest. Through his own hard work and the support of you and many other good people, he is a happy, thriving child.
One such support for us,The National Fragile X Foundation, provides resources, services, and support for research worldwide on Fragile X Syndrome and related conditions. In support of the NFXF's fundraising efforts this coming month during Fragile X Awareness Month, we are participating as a team in the NFXF Let ’Em Know 5K race. Basically, this means that across the country people like us will be completing a 5K anywhere, anytime, beginning July 1 and ending on July 31, 2014.
Last year, because of your generosity, Team Joaquin was awarded one of two top prizes nationally of an International Fragile X Conference 2014 scholarship and free hotel stay in Orange County, CA. As we believe that the opportunity to attend the International Conference should not be a privilege but a right for every Fragile X family, we donated these prizes to another family who needed it more through our local SoCal chapter. Let's do it again!
We ask that you donate as much via this fundraising page as you feel inspired to, and/or pass the word on to others. Any amount is appreciated and very helpful.
Nick Henning, Maria Scremin, Joaquin Henning, and Aimara Henning (adopted August 2013!)
Are you ready for a challenge?
Last year, the NFXF received a challenge grant from the Blount family, and this year the Blounts are generously doing it again!
But they believe, just like us, that we can do even better this year. So, they’re challenging us to raise $60,000 for a $30,000 grant. That’s $1 for every $2 we raise.
Let’s get moving!