BENEFITING: CURE CMD
EVENT DATE: Mar 09, 2013
Dear Friends and Family,
As many of you know my son Nicolas was diagnosed with L-CMD a muscular disease caused by a mutation in the LMNA gene. L-CMD is a muscle wasting disorder that also leads to breathing and heart failure.
I have recently taken the challenge of running my second 1/2 Marathon, after 7 years of running my first one. I'm doing this to honor Nicolas for his perseverance on simple daily living tasks that becomes a struggles, his bravery through all the medical tests, medications and health issues he has to endure in his short 6 years of life and to raise funds that will allow Cure CMD Scientists continue with researchs for a cure.
Nicolas is a bright boy and firmly believes that Cure CMD Scientists doing research on his condition, will find a cure or a treatment and he will eventually be able to do what any typical kid does, run, do sports or even the most simple task like getting dressed, going up or down stairs. He is very positive and hopes to grow stronger.
Please help keep Nicolas faith alive, donate to our cause and help fund Cure CMD Scientists to continue the research for a cure. For Nicolas and all children living with Congenital Muscular Dystrophy.
Aty & Ruben