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Greg Namoff's Fundraiser:

Nicolas-CureCMD-AllstateMiamiBeach/fundraiser

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BENEFITING: CURE CMD

ORGANIZER: Aty Ruben

EVENT DATE: Mar 09, 2013

Greg Namoff

THE STORY:

Aty Piedra wrote -

Dear Friends and Family,

As many of you know  my son Nicolas was diagnosed with L-CMD a muscular disease caused by a mutation in the LMNA gene. L-CMD is a muscle wasting disorder that also leads to breathing and heart failure.

I have recently taken the challenge of running my second 1/2 Marathon, after 7 years of running my first one.  I'm doing this to honor Nicolas for  his perseverance on simple daily  living tasks that becomes a struggles, his bravery through all the medical tests, medications and health issues he has to endure in his short 6 years of life and to raise funds that will allow  Cure CMD Scientists continue with researchs for a cure.  

Nicolas is a bright boy and firmly believes that Cure CMD Scientists doing research on his condition, will find a cure or a treatment and he will eventually be able to do what any typical kid does, run, do sports or even the most simple task like getting dressed,  going up or down stairs.  He is very positive and hopes to grow stronger.

 Please help keep Nicolas faith alive, donate to our cause and help fund Cure CMD Scientists to continue  the research for a cure. For Nicolas and all children living with Congenital Muscular Dystrophy. 

Thanks,

Aty & Ruben

 

DONATE

To This Fundraiser

$136

MONEY RAISED
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  • Gayle Goldberg

    $36

  • carol namoff

    $50

  • Adam Spolane

    $25

  • Marc Strauss

    $25

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Fundraise for this Campaign

The Team: $5,370 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Aty Ruben Piedra

Amount Raised

$5,234

 

174% Raised of $3,000 Goal

Fundraiser Title

Greg Namoff

Amount Raised

$136

Fundraiser Title

Maria Figuera-Fernandez

Amount Raised

$0

Fundraiser Title

Charlie Dague

Amount Raised

$0

Donor Comments

Marc Strauss

Marc Strauss

DONATION: $25

5 years ago

Adam Spolane

Adam Spolane

DONATION: $25

5 years ago

carol namoff

carol namoff

DONATION: $50

what a nice thing to do for Nicolas. 5 years ago

Gayle Goldberg

Gayle Goldberg

DONATION: $36

5 years ago