I am joining with families from around the world to fight Juvenile Myositis and find a cure for our daughter Brielle. Brielle was diagnosed with Juvenile Myositis in May 2013 and has been fighting hard ever since. We noticed our once vibrant active little girl was not engaging physically anymore. Also, she developed a rash on her face and painful sores under her nails. We had clues, for example when she said, “My neck is tired!” while playing the violin, and “my legs are TIRED” while taking a short walk through the parking lot; but at that time, we could not possibly have imagined that her weakness could be caused by a rare disease. Thankfully, she was promptly diagnosed once we got her to the hospital and after many doctors visits, aggressive treatments and physical therapy, she is doing very well. But we know this can change at any minute and we need your help to fund research into better treatments and a cure. Over the summer our support group lost 3 kids to this awful disease. Brielle is currently in a battle for remission and we are doing everything possible to get her there. Brielle, along with all the JM children are very brave and strong little people to be able to endure so much, at such a young age. Please join us in helping all the JM kids by donating to the Cure JM Foundation. With the rarity of this disease, your gift is vital to permitting further studies into finding the cause, best treatments and a possible cure.
Cure JM Foundation is a nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM). Cure JM Foundation is the ONLY organization that solely supports Juvenile Myositis and is the largest charitable supporter of Juvenile Myositis research.
And every dollar makes a direct impact – well over 95% of donations go directly toward research or educational programs. Your generosity supports dozens of important research studies and two Juvenile Myositis Research Centers of Excellence, in Chicago and Washington D.C.
Juvenile Myositis is a life-threatening and incurable disease affecting 17,000 children and adults in the U.S. alone. Juvenile Myositis (JM) causes the body's own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk, and disfigurement. JM can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.