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Nicole Amarel's Fundraiser:

Team Brielle - Cure JM - San Jose, CA National Conference

Nicole's Photo
Nicole's Photo
Nicole's Photo
Nicole Amarel

THE STORY:

I am joining with families from around the world to fight Juvenile Myositis and find a cure for our daughter Brielle.  Brielle was diagnosed with Juvenile Myositis in May 2013 and has been fighting hard ever since.  We noticed our once vibrant active little girl was not engaging physically anymore.  Also, she developed a rash on her face and painful sores under her nails.  We had clues, for example when she said, “My neck is tired!” while playing the violin, and “my legs are TIRED” while taking a short walk through the parking lot; but at that time, we could not possibly have imagined that her weakness could be caused by a rare disease.  Thankfully, she was promptly diagnosed once we got her to the hospital and after many doctors visits, aggressive treatments and physical therapy, she is doing very well.  But we know this can change at any minute and we need your help to fund research into better treatments and a cure.  Over the summer our support group lost 3 kids to this awful disease.  Brielle is currently in a battle for remission and we are doing everything possible to get her there.  Brielle, along with all the JM children are very brave and strong little people to be able to endure so much, at such a young age. Please join us in helping all the JM kids by donating to the Cure JM Foundation.  With the rarity of this disease, your gift is vital to permitting further studies into finding the cause, best treatments and a possible cure.

Cure JM Foundation is a nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM).  Cure JM Foundation is the ONLY organization that solely supports Juvenile Myositis and is the largest charitable supporter of Juvenile Myositis research.

And every dollar makes a direct impact – well over 95% of donations go directly toward research or educational programs.  Your generosity supports dozens of important research studies and two Juvenile Myositis Research Centers of Excellence, in Chicago and Washington D.C. 

Juvenile Myositis is a life-threatening and incurable disease affecting 17,000 children and adults in the U.S. alone.  Juvenile Myositis (JM) causes the body's own immune system to attack healthy cells and tissues, which can cause pain, weakness, inability to walk, and disfigurement.  JM can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.  

 

 

DONATE

To This Fundraiser

$3,350

MONEY RAISED
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  • Amarel Family

    $300

  • Jon and Paula Ball

    $400

  • Allen and Barbara Stroh

    $200

  • Ron and Suzy Mitchell

    $100

  • Sam & Billie McConkey

    $100

  • Berglund Family

    $50

  • Jim and Nora AMAREL

    $200

  • Diersbock Family

    $100

  • Gabriela and Alejandro Vasquez

    $100

  • David and Kenzie Braun

    $500

  • Venezia Family

    $100

  • Naomi Wollard

    $50

  • Anonymous

    $100

  • Dorst Family

    $200

  • The Olson Family

    $100

  • Jim and Nathalie Amarel

    $200

  • Kathleen and Curt Matthess

    $75

  • THE RYKEN FAMILY

    $50

  • The Robertson Family

    $50

  • Paisley Images Photography

    $50

  • Cassie Looker

     

  • Mark and Denise Robertson

    $100

  • Judi Fergason

    $50

  • Debbie Heffelfinger

    $50

  • Michael & Kaarin Puhala

    $100

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Donor Comments

Michael & Kaarin Puhala

Michael & Kaarin Puhala

DONATION: $100

4 years ago

Debbie Heffelfinger

Debbie Heffelfinger

DONATION: $50

4 years ago

Judi Fergason

Judi Fergason

DONATION: $50

4 years ago

Mark and Denise Robertson

Mark and Denise Robertson

DONATION: $100

Love you Brielle! 4 years ago

Cassie Looker

Cassie Looker

I in some small way this will help! 4 years ago

Paisley Images Photography

Paisley Images Photography

DONATION: $50

4 years ago

The Robertson Family

The Robertson Family

DONATION: $50

4 years ago

THE RYKEN FAMILY

THE RYKEN FAMILY

DONATION: $50

BRIELLE IS ALWAYS IN OUR PRAYERS. 4 years ago

Kathleen and Curt Matthess

Kathleen and Curt Matthess

DONATION: $75

4 years ago

Jim and Nathalie Amarel

Jim and Nathalie Amarel

DONATION: $200

4 years ago