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suely johns' Fundraiser:

NMF- Scholarship Fundraising by Ethan

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suely johns via Crowdrise
October 05, 2011

thank you everyone for checking out this page!!  See more

BENEFITING: The Marfan Foundation

suely johns

THE STORY:

Our son Ethan, age 9, was diagnosed with Marfan's Syndrome at 7 months. He wanted to start this fundraising page!!!  

Today, he is sick and stayed home from school.. he is very bummed that he will be missing the Chess Club and the math test.  We needed to turn a bad day of "I hate Marfan's" into something positive that he can look forward to...  so he decided to find ways to raise $$$ for the NMF.

Last year, our family was the lucky recipient of the NMF-National Marfan Foundation Scholarship and we were able to attend their annual conference in Portland.

In 2 years, the NMF annual conference will come to our hometown, in LA!! Ethan wanted to do anything and everything possible to raise $$$ for another family to be able to experience what we experienced this past summer. We were able to take Ethan to see a team of the top medical experts on Marfan Syndrome, and he had the opportunity to finally meet other kids and adults with Marfan. It was such a positive life changing experience for our family that we wanted to make sure another family can get to experience it.

Please help Ethan to raise $$ for the NMF Scholarship Fund so another kid and family can come to the conference, see our beautiful SoCal, and know that it was all because of you that they were able to come!!!

Ethan thanks you in advance and continues to brainstorm other ideas to raise money.  

Ethan would also like to ask everyone to have their own online fundraising page and join our team!!!!!  Specially other kids!!!!  That will mean a lot of him to see your support!!!

for more info:
www.marfan.org

       

DONATE

To This Fundraiser

$520

MONEY RAISED
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  • Ty Melvin Family

     

  • Magie & Fabio Pires

    $20

  • Henrique Kwong

    $30

  • COLE THIRKILL

    $10

  • Rakhi Bhowmick

     

  • Julian and Andrew Acosta

    $20

  • Al and Barbara Regnier

     

  • Leah McGaughey

    $20

  • Sariah McGaughey

    $150

  • John & Nathalie

    $200

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Fundraise for this Campaign

The Team: $520 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

John & Nathalie McGaughey

Amount Raised

$370

Fundraiser Title

suely johns

Amount Raised

$150

Fundraiser Title

Maria Terrazas

Amount Raised

$0

Fundraiser Title

Rakhi Bhowmick

Amount Raised

$0

Fundraiser Title

Jayeel Johns

Amount Raised

$0

Donor Comments

John & Nathalie

John & Nathalie

DONATION: $200

Ethan-You are an inspiration and we love you! 5 years ago

Sariah McGaughey

Sariah McGaughey

DONATION: $150

I HOPE YOU ACHEIVE YOUR DREAM TO HELP ANOTHER FAMILY. I know what is like to be in a hospital so I want you to not be scared, and if you are scared, remember your dream and it will be alright. 5 years ago

Leah McGaughey

Leah McGaughey

DONATION: $20

This is for you Ethan...Good Luck with your dream! 5 years ago

Al and Barbara Regnier

Al and Barbara Regnier

5 years ago

Julian and Andrew Acosta

Julian and Andrew Acosta

DONATION: $20

5 years ago

Rakhi Bhowmick

Rakhi Bhowmick

5 years ago

COLE THIRKILL

COLE THIRKILL

DONATION: $10

Our son Cole has Fragile X Syndrome and we know firsthand how difficult it is to get a disorder recognized, acknowledged and into public awareness. Wishing your family much luck in raising money for this very worthy cause! 5 years ago

Henrique Kwong

Henrique Kwong

DONATION: $30

Well done Ethan! Uncle is proud of you! 5 years ago

Magie & Fabio Pires

Magie & Fabio Pires

DONATION: $20

5 years ago

Ty Melvin Family

Ty Melvin Family

Way to inspire Ethan John! 5 years ago