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Stephanie Sanchez's Fundraiser:

EB N-O

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BENEFITING: EB Research Partnership

EVENT: 2013 ING New York City Marathon

EVENT DATE: Nov 03, 2013

Stephanie Sanchez

THE STORY:

Over 8 mos. ago, I discovered baby Easton from NY. And Robbie. And Ian. And Chloe. Too many more are suffering with this disease that robs them of a protein needed to connect tissues in their largest organ -- their skin. It is excruciating, expensive and has no cure. Yet.

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