In 2005, I was diagnosed with a rare genetic disorder that caused at 83% lifetime risk of developing stomach cancer and a 52% lifetime risk of developing lobular breast cancer. In 2006, I had a total prophylactic gastrectomy (complete stomach removal) and in 2010, a bilateral mastectomy with reconstruction. I have had tremendous support from my family, friends and medical community. three of my brothers have had a TG as well as extended family. Any support you can give to raise awareness of this disease, would be greatly appreciated.