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Anne Labenberg's Fundraiser:

Not Fast, Just Furious

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Anne Labenberg

THE STORY:

Michelle Regan wrote -

Sarcoidosis sucks. Most people I know don't have a clue as to what this autoimmune disease does and that is primarily because so little research has been done. I will admit that I used to be in the dark but as I have dived into what little research exists I have grown angry and frustrated. So many diseases and conditions are researched enough that doctors can give sound advice to a patient. This is NOT the case in the sarcoidosis world. Having had great discussions with a world's leading expert on this disease, I am further convinced that this disease needs attention. I mean, imagine sitting across from the man who wrote the guidelines for treating a certain type of sarcoidosis patient and he says "I can't advise you based on research evidence" yet there seem to be plans and protocols for everything else! Thankfully, this doctor takes matters into his own hands and is leading research studies as he is able. The K.I.S.S. 5k is a little far away for me to travel to at this time but I will be a virtual participant for the second year in a row in honor of one of my best friends. My best friend is simply amazing and deserves to be counseled medically with sound advice based on empirical evidence. Consider joining me in covering mileage or by giving towards my monetary goal. With the most sincere heart, I cannot thank you enough for your support for research and awareness of this wretched disease.

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Michelle Regan

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Anne Labenberg

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