Aileen Roberts wrote -
Avapalooza was inspired by my beautiful, brave daughter, Avalanna. At 9 months old, Avalanna was diagnosed with a rare pediatric brain cancer, AT/RT. Avalanna fought her battle with this dreadful disease for 6 years with more grace & humor than one can ever imagine.
In 2012, Avalanna succumbed to this pediatric brain cancer but not before she launched a movement that raised global awareness of AT/RT. We continue Avalanna's work through our work at our foundation Cure ATRT Now. We will not stop until we find a cure for this disease that took our little girl from us. We love you Avalanna, forever & ever & always- you inspire me every single day to keep going.