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Jacqueline Bleck's Fundraiser:

NYC Cure Choroideremia

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Jacqueline Bleck

THE STORY:

CHM is a rare x-linked hereditary degenerative disease that affects the retina. Most often, symptoms appear as night blindness and progressly vision deteriorates from the periphery towards complete blindness over time.

Scientists have discovered the exact location of the defective CHM gene on the X chromosome, and they say that CHM is an ideal target for gene-therapy research. Currently research is underway with funding from the Choroideremia Research Foundation and others to develop a treatment. Pre-clinical trial work is underway at the University of Pennsylvania Scheie Eye Institute under the direction of Jean Bennett, MD, PhD, and at Imperial College London under the direction of Miguel C. Seabra, MD, PhD. Ian M. MacDonald, MD, PhD, of the University of Alberta developed the genetic test for CHM and has been key in the ongoing research for a cure.

In 2009 Dr. Bennett’s work using an identical method of treatment for another genetic eye disorder, Leber’s Congenital Amaurosis, made international news and resulted in significant vision improvement for the study participants who were near or totally blind. A successful treatment for CHM is considered a stepping stone to treatments for more common genetic retinal disorders, and will advance the knowledge needed for treatment of a variety of other common genetic disorders.

$24,545

MONEY RAISED
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  • Chuck Carmody

    $50

  • Brian Zucker

    $250

  • Setareh

    $100

  • Joanne Salois

    $1,000

  • MN

    $262

  • Joe Salois

    $1,000

  • John Cortese

    $150

  • Tommy Lee

     

  • Tom Nakamura

    $100

  • Deirdre

    $100

  • Bobby and Lauren

     

  • Joe & Cathy Salois

    $500

  • James Horn

    $50

  • Joe & Doris Bianculli

    $100

  • Bret Corrigan

    $200

  • Dave Jordan

    $150

  • Donna Bleck

    $100

  • Barclays Corporate Matching

     

  • Brian Wendell

    $200

  • Josh Hershman

    $100

  • chris martinelli

    $150

  • Mike & Tracy Baroni

    $100

  • peter dell'orto

    $150

  • Jon Salois

    $250

  • Marjory White

    $100

  • Sheila Vaudreuil

    $500

  • Mark DeVoe

    $100

  • Mike & Marybeth Noonan

    $500

  • Den

    $100

  • Joe Picozzi

    $100

  • Anthony & Christine Thibeault

    $25

  • Jeff and Kim Gilbert

    $100

  • Brian and Barbara Young

    $100

  • Steve & Nancy Norquist

    $100

  • Will Creedon

    $100

  • Michael C. Creedon Jr.

    $100

  • Kevin Connors

    $100

  • Jack Creedon

    $100

  • Lisa Rodeschini

    $100

  • Kat and Jamie Burns

    $50

  • Lindsay Cowan

    $50

  • Ted & Lauren Goff

    $100

  • Jim and Nancy Coghlin

    $750

  • Beth Foss

    $75

  • Paul and Shirley Lombardozzi

    $100

  • Jamie Salois & Abby Friedlander

    $250

  • Paul & Anne Nally

    $200

  • Alisa Bernard

    $250

  • Anonymous

    $50

  • Cory MacDonald

    $20

  • Matt Zeffery

    $50

  • Corporate Matching

    $100

  • Chloe Hansen

    $100

  • Anonymous

     

  • Christopher and Jennifer

    $250

  • Ellie Nasser

    $50

  • Cosmo & Tina DeStefano

    $250

  • Anonymous

    $50

  • Salamone

    $25

  • Irving Plotkin

    $25

  • Stevie & Rae

    $50

  • Joe & Cathy Salois

    $250

  • Vivian Rodriguez

    $30

  • Danielle

    $100

  • Elizabeth Hamann

    $50

  • Meaghan Carrigan

     

  • Gramps

    $900

  • Anonymous

     

  • Scott and Tracy Brown

    $1,000

  • Vishang Chawla

    $100

  • Barbara Osterman

    $100

  • Matt Darcy

    $100

  • Paul and Barbara Darcy

    $100

  • The Harrington Family

    $250

  • Don & Brenda Salois

    $200

  • Marie and Mike Angelini

    $200

  • Jon Coughlin

    $100

  • Jeffrey & Patricia Schmierer

    $100

  • Ryan McCarthy

    $20

  • Mike Sobel

    $150

  • Courtney Allen

    $50

  • Fred and Lisa Orlan

    $200

  • Anonymous

     

  • Anonymous

    $1,000

  • Genie Jacobs

    $50

  • Kelly Maier

    $100

  • Matt Reinbold

    $50

  • Joe and Christy Saffi

    $50

  • Ben Burton

    $100

  • mitch reznick

    $75

  • Marvin & Jacqueline Lutz

    $50

  • Megan and Dwight Tompkins

    $120

  • mom and dad

    $311

  • Susan and Paul Violette

    $50

  • Dana Clark

    $40

  • Katie Healy

    $30

  • Anonymous

     

  • Big Joe

     

  • Diane LeClair

    $100

  • Mr & Mrs Bowermaster

    $500

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94% Raised of $26,200 Goal

Fundraise for this Campaign

The Team: $24,545 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Jacqueline Bleck

Amount Raised

$23,095

 

88% Raised of $26,200 Goal

Fundraiser Title

Jonathan Salois

Amount Raised

$1,350

Fundraiser Title

Mark DeVoe

Amount Raised

$100

Fundraiser Title

John Withrow

Amount Raised

$0

Fundraiser Title

Brian Zucker

Amount Raised

$0

Fundraiser Title

Sheila Vaudreuil

Amount Raised

$0

Donor Comments

Mr & Mrs Bowermaster

Mr & Mrs Bowermaster

DONATION: $500

5 years ago

Diane LeClair

Diane LeClair

DONATION: $100

5 years ago

Big Joe

Big Joe

5 years ago

Anonymous

ANONYMOUS

5 years ago

Katie Healy

Katie Healy

DONATION: $30

5 years ago

Dana Clark

Dana Clark

DONATION: $40

5 years ago

Susan and Paul Violette

Susan and Paul Violette

DONATION: $50

5 years ago

mom and dad

mom and dad

DONATION: $311

we love you! 5 years ago

Megan and Dwight Tompkins

Megan and Dwight Tompkins

DONATION: $120

We are so proud of you both!!! Good luck! 5 years ago

Marvin & Jacqueline Lutz

Marvin & Jacqueline Lutz

DONATION: $50

5 years ago