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Shwetha Devanagondi's Fundraiser:

Shwetha's Run for EDS Awareness

Shwetha's Photo
 

Shwetha Devanagondi via Crowdrise
March 19, 2011

Thank you for donating!! I can't believe we made it past $3,000! You're all amazing!  See more

BENEFITING: EDS TODAY

EVENT: NYC Half 2011

EVENT DATE: Mar 20, 2011

Shwetha Devanagondi

THE STORY:

My good friend Jenna Holloway was diagnosed with Ehlers–Danlos Syndrome in October 2009. Ehlers–Danlos syndrome (EDS) is an inherited connective tissue disorder, caused by a defect in the way the body makes collagen. The faulty collagen makes the connective tissue in the body weak and fragile. This causes the progressive deterioration of the joints, skin, blood vessels, and organs. There is no cure for Ehlers-Danlos Syndrome. We need your help to raise money for medical research and awareness!

Jenna's battle with EDS began three years ago when she developed chronic thoracic outlet syndrome, a painful compression of the nerves and arteries in the shoulders. Even with aggressive physical therapy, her shoulders and neck became loose and unstable. Now, It is not uncommon for her shoulders to pop out of joint twenty or more times a day. Recently, EDS caused Jenna to develop adrenal insufficiency, thyroid problems, and multiple food allergies to wheat, dairy, and eggs due to fragile collagen. For the last couple of years, Jenna has fought a daily battle with chronic widespread pain and fatigue. Jenna strives to keep a positive outlook while balancing her health, work, and social life. Her free time is dedicated to researching new ways to treat the manifestations of EDS and hopefully find new clues to a cure.

Over the past few years, I've watched Jenna face challenge after challenge with an unwavering spirit. Her battle has inspired me to run the NYC Half Marathon (March 20, 2011) to raise money for EDS Today. EDS Today is a 501(c)3 non-profit organization whose missions statement is "to provide information and support to people living with EDS, their families, and the medical community."

Donations made through this website (www.crowdrise.com) will go to EDS Today and are 100% tax-deductible. You may also send donations directly to me if you don't want to use the website. I would appreciate anything you are able to give.

Please visit my site often to view updates about my training and fund-raising efforts. For more information on EDS Today, you can visit their website at http://edstoday.org/. If you have any questions, feel free to contact me directly at devanas333@gmail.com.

Thank you so much for your support and for joining me in raising awareness for EDS.

Shwetha Devanagondi
(& Jenna Holloway!)


P.S. The Zebra is the mascot for Ehlers-Danlos Awareness. It stems from the medical philosophy, "If you hear hooves in the distance, expect horses, not zebras."

DONATE

To This Fundraiser

$3,070

MONEY RAISED
  •  
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  • Shwetha Devanagondi

    $50

  • Jenna Holloway

    $50

  • Carolyn Ryan

    $100

  • Twiggy & Kitty

    $50

  • salim & medha

    $150

  • Dorothy Mezic

    $50

  • Anonymous

    $100

  • Troy Bendouregg

    $50

  • Fitz

    $50

  • Chris

    $100

  • Renee Johnson

    $50

  • Anonymous

    $150

  • Aunt Kim & Uncle Mike

    $50

  • John & Robin Holloway

    $50

  • Adam McCue

    $20

  • Carla

    $50

  • Troy Bendouregg

    $50

  • Japhet & Susheela Joseph

    $100

  • Carlos Valle

    $20

  • Lee & Kathleen Alpaugh

    $200

  • jkh

    $50

  • Jonathan Holloway

    $25

  • Bala & Bhaskar Devanagondi

    $50

  • Troy Bendouregg

    $50

  • Aunt Cynthia and Uncle Rick

    $50

  • Nina

    $35

  • Christine Shieh

    $25

  • Melissa Chan

    $50

  • Lisa

    $30

  • Diana Hwu

    $20

  • Troy Bendouregg

    $50

  • Maxine Harden

    $25

  • jain and khursheed syed

    $100

  • Troy Bendouregg

    $50

  • Vidya Anirudha Bhandiwad

    $50

  • Ed and Colleen Coda

    $250

  • Caitlin

    $20

  • Lisa

    $50

  • Hai Pham

    $50

  • Anonymous

    $50

  • B.M. & Swarna Sundara

    $100

  • Rose & Lynn Boyd

    $100

  • Gail Anderson

    $50

  • Freda & Bob

    $250

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307% Raised of $1,000 Goal

Fundraise for this Campaign

The Team: $3,070 TOTAL RAISED SO FAR

Fundraiser Title

Shwetha Devanagondi

Amount Raised

$3,070

 

307% Raised of $1,000 Goal

Fundraiser Title

Erika Payne

Amount Raised

$0

Donor Comments

Freda & Bob

Freda & Bob

DONATION: $250

6 years ago

Gail Anderson

Gail Anderson

DONATION: $50

Run like a Zebra!! 6 years ago

Rose & Lynn Boyd

Rose & Lynn Boyd

DONATION: $100

6 years ago

B.M. & Swarna Sundara

B.M. & Swarna Sundara

DONATION: $100

Good Luck Shwetha. 6 years ago

Anonymous

ANONYMOUS

DONATION: $50

Good luck Shwetha. Vani 6 years ago

Hai Pham

Hai Pham

DONATION: $50

6 years ago

Lisa

Lisa

DONATION: $50

6 years ago

Caitlin

Caitlin

DONATION: $20

6 years ago

Ed and Colleen Coda

Ed and Colleen Coda

DONATION: $250

6 years ago

Vidya Anirudha Bhandiwad

Vidya Anirudha Bhandiwad

DONATION: $50

6 years ago