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2019 Cavernous Angioma Reds Game

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Event Details
Reds vs. Rangers Father's Day Game

Hosted by Cari & Tony Mayer in honor of their son, Dylan, who has cavernous angioma.  Join us as we raise funds and awareness to benefit Angioma Alliance, a 501c3 organization dedicated to informing, supporting and empowering people affected by cavernous angioma and driving research for better treatments and a cure.

Joe Price, Former Reds Pitcher (80-86) will be there!

$20 Outer Mezzanine Tickets

Section 412-414 on 3rd baseline

$11 of every ticket benefits Angioma Alliance

Cerebral Cavernous Angioma Fast Facts

1. Cerebral Cavernous Angioma is also known as cerebral cavernous malformation (CCM) or cavernoma.

2. A cavernous angioma is a mulberry-shaped abnormal blood vessel with thin, leaky walls.

3. Cavernous angiomas are found mostly in the brain and spinal cord.

4. 1 in 500 people have at least one cavernous angioma in their brain. Most people will have no symptoms.

5. Cavernous angiomas can grow and hemorrhage at any age, including in young children. They are most likely to become symptomatic when a person is between the ages of 20-40.

6. The most common first symptom is seizure (50%), followed by hemorrhage (25%) and neurological deficits (25%) like blurred vision and weakness in limbs.

7. Cavernous angioma is hereditary in about 25% of people who have the illness.

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When
Sunday June 16th
1:00 pm
Where
Great American Ball Park, 100 Joe Nuxhall Way, Cincinnati, OH, USA
100 Joe Nuxhall Way, Cincinnati, OH 45202, USA

Story
Dylan's Story

In June 2012, our 1 year old son Dylan suffered a seizure which led him to being diagnosed with multiple cavernous angiomas in his brain. He underwent brain surgery in July 2012 to remove the lesions. 

In August of 2015, Dylan underwent a 2nd surgery to remove another bleeding lesion. Dylan continues to live with this disorder and is looking at the potential of future surgeries. In worst case scenarios he may live with inoperable lesions that leave him with a long list of deficits or could be fatal. After genetic testing, we learned that Dylan has the genetic form of this disorder. 

Cavernous angiomas are abnormal blood vessels in the brain and spine that can hemorrhage and cause seizures, disability and even death, at any age. About 1 in 500 people have a cavernous angioma and up to one third of these people will have symptoms. To date, there is no cure and there is no treatment other than brain or spinal surgery.

Posted by ANGIOMA ALLIANCE