Robin Shea wrote -
Aeden was diagnosed with Juvenile Dermatomyositis approximately 7 years ago, at the age of 2. Since that time, he has undergone many rounds of IVIg, weekly Methotrexate injections, occasional steroid therapy, and maintenance medication. He is currently in remission for the second time. He is an active, happy young man, but the research for a cure is so important for children like Aeden and others. While he is currently active and happy, there is always a chance lurking that he will relapse.
Please consider joining our team, Aeden's Avengers, to participate in the walk and/or by making a donation that our research for a cure so desperately needs.
Our family and the families of JM children everywhere appreciate any way you are able to help.
Juvenile Dermatomyositis (JDM) is an inflammatory disease of the muscle (myositis), skin, and blood vessels that affects about three in one million children each year. The cause is unknown. The primary symptoms of JDM include muscle weakness and skin rash. All age and ethnic groups are affected. Most cases start in children ages 5 -10 and adults ages 40 - 50. Girls are affected about twice as often as boys.
Patients with juvenile dermatomyositis (JMD) develop weakness in the large muscles around the neck, shoulders, and hips. This causes difficulty in climbing stairs, getting into cars, getting up from a chair or off the floor, or brushing hair. Most patients have little, if any, pain in their muscles, which distinguishes them from patients with other forms of muscle disease. Many patients with other conditions complain of weakness; however, when questioned closely, they really mean that they are tired, short of breath, or depressed rather than suffering from true muscle weakness.
Please see this website for more information (copy this link and paste it into the url):