Join us for the Inaugural Walk Strong to Cure JM – Florida
February 10, 2018
Bill Frederick Park at Turkey Lake
3401 S Hiawassee Road, Orlando, FL 32835
9AM - check-in and events begin (same day registration available)
10AM - Noon- Walk and festivities
Contact Walk Chair Denise Rackauskas at firstname.lastname@example.org or 954-461-8294 for more information.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can cause pain, weakness, inability to walk and disfigurement. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.
And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure. Last year, we were able to fund research at 10 prestigious research institutions, helping to advance JM research at an unprecedented pace! Your support now will keep that momentum going. Learn more at www.curejm.org.
-----> Brookelynn was diagnosed with JDM in May 2014, fundraising for this rare disease is crucial. We first had got to experience where the money is going when we visited DC this summer to see the leading specialist at the Myositis Center. Juvenile dermatomyositis (JDM) is an idiopathic inflammatory myopathy (IMM) of presumed autoimmune dysfunction resulting in muscle weakness among other complications. It manifests itself in children; it is the pediatric counterpart of dermatomyositis. In JDM, the body's immune system attacks blood vessels throughout the body, causing inflammation called vasculitis. In the United States, the incidence rate of JDMS is approximately 2-3 cases per million children per year. The UK incidence is believed to be between 2-3 per million children per year, with some difference between ethnic groups. The sex ratio (Female : Male) is approximately 2:1. Other Idiopathic inflammatory myopathies include; juvenile polymyositis (PM), which is rare and not as common in children as in adults.