Jazmyne Harris was diagnosed with Friedreich's ataxia (FA) when she was just 14-years-old. In 2010, her father Virgil started Jumpin’ for Jazz, a 501(c)(3) organization, to raise awareness and funds to help people like his daughter suffering from this degenerative disease.
Today, Jazmyne is 22-years-old, and though life is certainly different, she’s hopeful that fundraising for FA can help raise money for research that will find a cure!
Friedreich's ataxia is a rare, untreatable and incurable degenerative neuro-muscular disorder that affects approximately one in 50,000 people in the United States. Most people with FA are diagnosed between the ages of 5-18 and develop motor incapacitation that requires mobility aids such as a cane, walker or wheelchair by their teens or early 20s. Few live past the age of 35, yet Jazmyne and her family remain hopeful.
Because rare diseases like FA don’t promise large-scale returns that attract big pharma, research lacks the major funding it needs. YOU can help. Donating through this page supports Jumpin’ for Jazz and research that will improve the quality and length of life for those diagnosed with FA. Please help us ensure quality care for all and empower research organizations to find the cure.
This social funding campaign is complementary to our June 10, 2018 benefit at the Jazz Kitchen (5377 N College Ave, Indianapolis, IN 46220). The event will feature live music and a special guest speaker, Mark Payne, MD, a renowned authority on Friedreich's ataxia.
For more information, drop us an email at firstname.lastname@example.org or visit https://www.thejazzkitchen.com/event/1691744 for tickets.