Through February 28, 2019, for every $10 you donate directly to Ellie's Steps for Strength, you will be entered into a drawing for a beautiful "Flame the Rooster' Polish Pottery platter donated by More Polish Pottery valued at $498. We will pull the winning entry on March 1st with Ellie and Bear during a LIVE show. It's a tax-deductible donation - and you can also win a vbbeautiful prize!
Ellie was diagnosed with Juvenile Dermatomyositis in February 2017. At the time of diagnosis, she couldn't lift her head off a pillow to get out of bed. Instead, she rolled out of bed. She couldn't tie her shoes or was able to put on her own shirt. She fell and had to crawl up stairs to her room.
We are thankful for Lurie's Childrens Hospital In Chicago that were aggresive with her treatments. She hada over 100 doctor appointmets in 2017, many of which were appointments helping her regain back muscle strength and flexibility. This auto-immune disease can cause her muscles to flare and cause pain. It also makes her very tired.
Two years later, and even partaking in a national research study, we recognize she still has signs of the disease. The good news is that she has been responding to treatment. However, with the steroid and methotrexate use does come side effects. Doctors carefully monitor her every month to monitor any changes and to keep her on the right track for recovery. Our goal, as well as other parents of JDM kids, is for medical remission when they are free of these terrible side effects.
So, while we are optimistic, we are also cautious.
We are fighting for a cure and better up to date treatment options. There has not been new medical treatment options for decades. With all the technology and resources, this is a rare disease. The government and medical companies do not make money on doing trials for these small batches of patients. That is why it is important to support Cure JM!
Through Cure JM, we feel that this can happen! Cure JM is the leading organization that helps with funding medical research. With close to 90% going directly towards research, we feel that this a very important organization not only for Ellie but the thousands of other kids that have JDM, or yet to be diagnosed with JDM.
In addition, if you feel compelled to join our walk team in June, we welcome you! Details are below.
JOIN US IN JUNE 2019 FOR OUR 3rd ANNUAL WALK STRONG TO CURE JM
WHEN: Sunday, June 23, 2019
WHERE: The Hyatt Lodge at McDonald's Campus
2815 Jorie Blvd, Oak Brook, IL 60523
Registration opens at 9:00am
Event & Festivities: 10:00 - 12Noon
This event is free and open to the public.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure.
Our first two Walk Strong to Cure JM - Chicago combined raised over $175,000.
With this continued great support from families and friends we were able to fund research at 20 prestigious research institutions, helping advance JM research at an unprecendented pace!
Your gift now will keep that momentum going. Every donation goes straight to Cure JM, and since inception over 90% of all funds raised go directly to research.
Join the team and fight against JM/JDM today!
Contact email@example.com for more information.