Four years ago our lives changed forever. The story is detailed, emotional and a bit complex but a powerful one of a strong little girl, Emma Cate. Frankie Lemmon has touched our lives in ways we didn't even know we would need.
Please know, every dollar of this fundraiser counts toward customized education, healthy food, teachers' salaries and Emma's favorite...music therapy!
Please read a bit of our story and how it all got started.....a glimpse in to the strength Emma has brought into our lives.....
“We are fairly certain, due to the heart murmur, low muscle tone, dysmorphic features, small weight, shape of head, low ears, etc, etc that Emma has a generic condition, most likely a syndrome but we are not sure which one…”
The doctors had taken samples to send off for genetic tests….they will get back to us in a few months.
2 days later, we would go home.
After the most traumatizing 7 days of my life, our lives, we were released into the “real world” knowing nothing.
What do we do with our daughter who can barely eat, is so small, fragile and her condition would not be known to us, if anything, in a few months… we are not medically qualified to care for her…only love her.
We pass our car seat test, get wheeled out and go home.
I remember a rainbow…
9 weeks later Chuck walks in the door with the mail, an envelope from the Geneticist.
…..the rest of that memo is wordy yet vague and said nothing. One trip to the genetic office was all it took for us to learn that there is no other exact case like hers in the world.
And here we are today....four years, 3 nannies, 2 pediatricians, 4 new pairs of orthodics, 1 g-tube and 2 incredible years at 1 amazing school later...... join us in helping to share our story and let Frankie Lemmon keep helping other kids and families thrive.