Nearly every day we are contacted by a family member in desperation for their child - desperation for their quality of life and the quality healthcare they are receiving in order to live the quality of life they deserve. Hydranencephaly is a rare neurological condition in which the brain's cerebral hemispheres are absent to a huge degree - think the gray/white matter, the biggest portion of the brain, that is all missing and science would have you believe that life is impossible without this vital asset. False. With quality care and the building of strong advocates in parents, these children have every opportunity to have an impact in their communities that any other individual would have - not without limitations, but with a whole lot of love and ability to inspire.
Please help us to provide contradications to the long list of medically subjected misconceptions that exist for these children and instill a heavy dose of hope within the hearts of the parents who have been encouraged to just give up. Through the advocacy and awareness efforts made since our founding in 2011, we have reached nearly 400 families in 17 countries and we are reaching more every day!
We are 100% volunteer driven, so your donation is used solely for the purpose of supporting our mission in providing individualized support to our families.