Our CHD journey started at our 20 week anatomy scan. It seemed as if our roller coaster ride to have our first baby was coming to an end when we arrived at the doctor's office to finally get a deeper glimpse into our little girl. We chit-chatted with the ultrasound tech and then she said that the doctor would come in and discuss the results. We were on cloud 9 when our doctor said that all her organs were present and looking good with the exception of a major heart condition. Without skipping a beat, she went on to say that I'd just need to deliver at a different hospital (right up the block) that was connected to Cooks Children's hospital in Fort Worth, we'd work with Dr. Roten as our pediatric cardiologist and that a Dr. Tam would be our surgeon. I was advised to reach out to Dr. Roten for an echocardiogram (echo) in the upcoming weeks b/c she liked to see a little more development so that she could get a better idea of what we might be working with. My head was spinning. I broke down and said ... "What!?!?" I went home with a piece of paper saying abnormal mitral valve (dysplastic), ventricular septal defect and aorta small. Of course, I started googling these to try to figure out what this all meant. I was shocked to find out that 1:100 children are born with CHDs. This number blew me away. My results kept leading me back to self diagnosis of HLHS - Hypoplastic Left Heart Syndrome. This was one of the most rare and complex of the CHDs that I was researching. There would be a series of 3 surgeries to rework her heart so that she could live using only the right side of her heart. Without these surgeries she would not survive. Those first few days after learning about the heart defect were dark for me. I cried non-stop for about 2 days before Chad restricted my "research" time. :) The uncertainty of whether or not our dream of having a child would come true was yet again in the forefront. Thankfully, we were able to get into the pediatric cardiologist the following week and confirm that the diagnosis was most likely leaning towards HLHS but we'd need to have a few repeat echos to get a better idea of what we would be working with. We were advised of the uncertainty for how long she will live as these surgeries have only been done since the late 80s, developmental issues to expect and what problems young adults are currently facing. It was all so overwhelming but we embraced our "new" journey, learning as much as we could. Fast forward 2 months and 2 echos, we were given hope that Savannah's heart was showing growth and that we may only require an arch fix instead of the 3 surgeries. The final diagnosis would have to wait until she was born b/c it was difficult to get a perfect picture through me of exactly how things were progressing. On February 3, Savannah Quinn entered the world at 6:09 PM, 5lbs 13 oz - 18 inches. It was all bittersweet b/c while I wanted to finally see our baby girl, I was terrified and sad. She was safe and sound within my womb and I didn't want her to have to endure the incredibly tough road ahead. I was able to hold her for a few minutes before she was taken to the NICU for her first echo and ultimately a course of action. Our prayers were answered and the best option on the table (VSD and arch repair) became reality. At just 1.5 days old, Savannah had open heart surgery to fix the VSD (which was providing blood flow to the left ventricle and allowing for the growth we needed to keep her a bi-ventricle baby) and narrowing of her arch. The entire surgery lasted about 8 hours. When we saw her again in the CICU she looked so different; swollen, a million wires / tubes and chest open seeing her walnut sized heart beating. :( They were able to close her chest on 2/7 and our next goal will be to get her off the ventilator by the end of weekend. Once we step down to the NICU, we'll work on feeding her so that we can take her home. All in all about a 3 week recovery with no major complications. We wouldn't be here today without the love, support and prayers from family, friends and friends of friends. I've met so many wonderful families who have been impacted by CHDs through my friends and support groups on Facebook. They have shared their stories in an attempt to help ease the shock / pain involved with diagnosis, surgery, recovery and life in general. They've shared the realities of their personal experiences and it has helped prepare me for what's to come. This virtual run benefits "Mended Little Hearts" a support group for parents of children with CHDs. There are local chapters throughout the country who help parents cope with the stress associated with CHDs and ease concerns through a "parent-to-parent" support system. They provided us with a Bravery bag in the CICU that included a variety of things to help us get through this tough time (i.e. educational materials, snacks, activity books, etc) and I look forward to joining the local meetings to participate in our own recovery and give back to other families when the time is right. Proceeds collected from this event will support Mended Little Hearts' Bravery Bag program and other hospital programs. For those of you who aren't able to walk, jog, run, swim or bike your selected distance, I'd like to add "DRIVE or RIDE" to the list of activities you can do to participate in this virtual race. Chad, Savannah and I would like to thank everyone in advance for helping us increase awareness of CHDs and any donation you can make to this valuable resource and cause.