In honor of our warriors, join the I Heart Someone Rare Challenge in honor of Rare Disease Day on February 28th.
When a child is diagnosed with Juvenile Myositis, their young life is turned upside down. This life-threatening disease changes everything. It can attack any system of the body. The child faces a body fighting itself. There are no FDA-approved treatments. There’s no cure.
Imagine a child watching with envy while other kids do things that they can’t do. Imagine missing out on a normal childhood because of hospital visits, treatments, and side effects. Imagine living in fear of the sun.
Imagine a child asking, “why me?”
None of us would ever wish that on a child.
We’re not powerless. This week, we can help.
You can give these kids hope. Hope for better treatments. Hope for a normal childhood. Hope for a brighter future. Hope for a cure.
Cure JM has made extraordinary progress in Juvenile Myositis research and programs, but there’s so much left to do. Cure JM’s Strategic Research Plan calls for substantial new investments to identify and understand the genes that cause Juvenile Myositis; new support for drug discovery and funds to get those advanced treatments to our kids.
We can accomplish these goals, but we need to take action.
Like most rare diseases, Juvenile Myositis research is funded almost entirely from grassroots efforts, like this fundraiser. Every single dollar makes a difference. One reason Cure JM is a top-rated charity is that since inception over 90% of revenues go directly to research and programs to support their work to help our kids reach their full potential.
Thank you. Your support gives families the hope and strength to keep on fighting.