Thanks for visiting my website today!
My friend Janet has been living with two genetic diseases for the last 30 years, that have been passed down and continue to be passed on to other generations. Myasthenia gravis (pronounced My-as-theen-ee-a grav-us) and another RARE disease Hypertrophic Cardiomyopathy.
She pushes through life because she is a FIGHTER.
Her friendship and fighting spirit is why I am raising money and walking beside here again this year because it is a RARE disease and there is very little federal money giving to the MG foundation for research. Research can help the MG foundation to develop medicines that might help slow down the process or even figure out how to stop it.
Janet Bauer's 2018 Family & Friends Team
Janet Bauer wrote:
Welcome family and friends to my fundraising page and thank you very much for any donations you can contribute to the 6th Annual Conquer Myasthenia Gravis (MG) Walk. If you can come out and walk, you are so very welcome to join us.
In my 30th year of living with Myasthenia Gravis, I have had a lot of awesome people who continually help me get through tons of crappy stuff. I am so thankful for each and every one of you.
Every year I have dedicated my walk to incredible people that have selflessly cared for my well-being. This year I want to dedicate my walk to my sister-in-law, Lisa Bychowski.
As always, when looking at me you see the gimpy right eye and the occasional Jell-O legs, but nothing else. Actually, I have lost my smile on the outside, but fortunately not the inside. I see double of everything all the time, which makes the world twice as much a brighter place. I struggle swallowing food and liquids, which you would think would have helped me lose more weight, but no luck. Lastly, my muscles in my neck, hands, arms and legs get really weak, but it gets me out of exercising.
Again my thanks for any donation you can make to Conquer Myasthenia Gravis. Their dedication to aiding MG patients in getting valuable information or assisting with medication is so necessary. Because MG is such a rare disease, the research dollars are severely limited, but Conquer MG makes every effort to fund as much as possible with your support.
Love to all, Janet
Thanks so much in joining with me to help MG and giving hope for the future. 6th annual Strides Against MG