On June 30th, GeneSpark is hosting our Third Annual Kleefstra Syndrome (KS) Walk & Roll. Anyone in the world can participate, either in-person at our group walk in Boston, MA, or by planning a walk in their own community. Wherever you are, we are united in the common goal to raise awareness and support for KS.
After selecting a route (up to 5K or 3 miles) in your own neighbourhood you can invite friends, family members and colleagues to support you with a donation and even join you on your walk. On the walk date, participants will walk or "roll" (wheelchair, stroller or cycle!) their way to the finishing point. Proceeds raised will go towards developing a drug to treat KS.
While there is no treatment for KS today, scientists working with GeneSpark have identified a “hit” on a drug that shows significant promise in improving Kleefstra syndrome patient brain cells. Now, funding remains the biggest barrier as we look to move this ongoing research forward and improve the lives of KS children around the world.
Start your fundraising team today by clicking on the "Set Up Your Fundraiser" button.
GeneSpark is a charitable foundation that has been making strong progress towards a drug treatment for Kleefstra syndrome (KS). KS is a rare genetic condition that involves lifelong intellectual and physical disabilities, including speech impairment, heart defects and seizures. We accept tax-deductible donations from U.S. taxpayers through our partnership with Charities Aid Foundation America (CAF America), an independent U.S. registered charity (registration number 43-1634280). All donations are receipted by email and are directed to the GeneSpark.org Fund at CAF America.