This is Olivia. She looks like a normal two and half year old. She is a beautiful little girl. Olivia has a rare disease called Wolf Hirschhorn Syndrome (WHS). It affects her physically and developmentally. She has an atrial septic defect that will need heart surgery, she has seizures, and she cannot walk or talk yet. Wolf Hirschhorn Syndrome, a deletion on the 4th chromosome, affects 1 in 50,000 kids in a high degree of variability. The thing is, there is science and technology out there that can fix some of her ailments. There are ways to replace the genes that are missing not just for kids with WHS but for a wide variety of chromosomal abnormalities.
With your generosity, we can help find a way to fix some of these ailments for so many children, like Olivia.
I am Olivia’s mom and I am also the founder of Liv4TheCure, a non-profit that I started to raise awareness, help families, and fund research for kids with Wolf Hirschhorn Syndrome. Our first line of business is to get the experts on WHS and the scientific community together for a two-day symposium. We at Liv4TheCure believe that the deletion on Olivia’s chromosome can be replaced and that some or all of her ailments, as well as other children’s WHS ailments, can be cured. Can you imagine? Taking away seizures from these small children. Allowing them to learn how to walk and talk. There is technology out there now that is fixing genetic deletions. We just need to bring the WHS community and the scientific community together to realize the potential with this rare disease and in turn create something that could fix many diseases.
I’m asking you to help us raise the money to have this meeting of the minds. Help us to cure the issues not only of Olivia and her WHS brothers and sisters but also of children with other rare diseases. That is why your donation is so important. Your gift today will help us make a significant difference in the lives of these children.
Thank you in advance for your contribution. You have no idea how much it means to us to have your support.
President & Founder of Liv4TheCure