Thanks for visiting our National CMV Foundation campaign page.
We are excited to be raising support for this important organization.
The mission of the National CMV Foundation is to bring awareness to congenital cytomegalovirus (CMV). The most common viral infection that infants are born with in the United States, occurring in 1 in 200 births.
Because CMV is a silent disease – meaning most people who are infected have no signs or symptoms – the mother is likely unaware she has an infection during pregnancy. Babies born with congenital CMV may have birth defects and/or experience a vast range of developmental disabilities. And 91% of women DON’T know about it.
The Armstrongs' Story: We had never heard of CMV until one hour after our daughter, Madeline Leigh, was born on Jan. 31, 2014. There were no indications of a problem during my pregnancy and therefore we were shocked to learn that I had contracted a PREVENTABLE virus during my pregnancy that was so devastating to our baby. Maddie suffered hearing loss, brain calcifications, liver and spleen damage, and her cerebellum (the portion of the brain that controls coordinated movement) had only formed 10%. Maddie spent ten days in the NICU before we learned the devastating news that she was terminal. We made the gut-wrenching decision to bring her home on hospice care and Maddie passed away after two days at home. She was only 12 days old. We are passionate about raising awareness of congenital CMV in hopes of saving other families the heartache that we have endured.
Please support our team in loving memory of Maddie and help us raise funds for the National CMV Foundation!