On May 6, 2018, Cure JM is hosting a walk in Warrenville, IL to raise money and awareness for juvenile dermatomyositis. It just seems like yesterday that my daughter was unable to walk up the stairs to her bedroom, climb out of bed or even brush her hair. Yes, Melinda does still have Juvenile Dermatomyositis. We are grateful that her body has responded to the cocktail of medications and infusions that are need to keep the disease controlled. Every day I worry about the chance that she may flare or that her body may not tolerate the next scheduled wean of medications. There is no cure for this disease. Some of the symptoms include skin and muscle involvement. In some cases, children can also have lung involvement, swallowing difficulties, calcium deposits under the skin, and ulcerations of the skin. The medications used to treat this disease cause horrible side effects. Our children deserve better treatments and a hopefully a cure in the near future. We are grateful for the continued support from families and friends. With every donation we get closer to better treatments and a cure.
The Ortega Family