1 in 2000 people in the USA have an autoimmune neurological disease called Narcolepsy, but 75% of those don't even know it.
Narcolepsy symptoms include excessive daytime sleepiness, sleep paralysis, hallucinations, sudden loss of muscle tone (cataplexy), and interrupted nighttime sleep. For college and other students with Narcolepsy, holding a consistent schedule and workload can be difficult, and even impossible at times. Some universities and educational institutions offer accommodations to Narcoleptic students, but awareness of Narcolepsy and awareness of these accommodations are low.
Narcolepsy 101 seeks to be the bridge between Narcoleptic students and their universities. Our founder is currently an undergraduate at a university in Idaho, and knows firsthand the challenges that come with having an invisible illness.
Our mission: To help Narcoleptic and Cataplectic students receive timely, proper diagnosis, advocate for university accommodations, and spread awareness among family and friends.
In order to do achieve our mission, we need to reach the widest amount of people with Narcolepsy, and the best way to do that is through having a website. On our website, we would have screening tests for students that suspect they might have Narcolepsy, a database to direct them to the closest specialist for diagnosis, information from the American Disabilities Association and the Social Security Administration about the rights of disabled students, and both brief info and deep analyses of what Narcolepsy is, why it happens, and how to fight it.
And that is just to start with. We have big plans for our organization, including eventually going from university to university in the United States to meet with disability administrators and present to them about Narcolepsy. But for now, we need help getting started.
$400 would pay for 36 months of web hosting, as well as marketing costs, so that Narcolepsy 101 can reach the widest amount of people who may have Narcolepsy. Without this money, we will be just another one of those well-meaning charities that fail before they even start.
Remember, 1 in 2000 people in the United States has Narcolepsy. Are you in the 75% of undiagnosed Narcoleptics?