Imagine your whole life changing in a split second. Going from a healthy, happy, life and career to being told you have a few months to live. Imagine finding there’s no cure. That different doctors have radically different ideas of what you should do. That the internet is full of confusion, technical medical jargon, and stories of despair.
That’s what happened to me, and to countless others diagnosed with glioblastoma (GBM), a highly aggressive brain cancer.
OurBrainBank is taking the negativity of a GBM diagnosis and turning it around. We’re providing hope for a better today, and hope for a longer tomorrow. People affected by GBM can get help today, using our free App to track symptoms, test neurological skills, and share data with their clinicians.
At the same time, they can enjoy knowing their personal data helps fast-track new treatments and approaches to moving GBM from terminal to treatable. Our long-term goal is to create a massive data set for GBM, incorporating patient experience into research and, ultimately, treatments.
With your support we can reach our phase one goal of $400K. Already we’ve raised more than $120K. Funds raised will allow us to:
- Roll out our free App to meet demand in the UK and other English-speaking markets. Patients are desperate. We need funding to secure the same regulatory, ethical approval we have in the US.
- Engage more patients and caregivers through smart and savvy communications and marketing. We’ve already attracted thousands, and urgently need financial support so we can meet the demand from desperate families.
- Analyze data collected and publish our findings to help medical, scientific, and technology leaders understand the patients’ perspective and incorporate that data in their research.
- Fund our growing virtual patient advisory group meetings, where people share experiences, seek advice, support each other, and provide critical real-life experiences of different treatments, surgeries, and coping strategies.
- Enable us to exhibit at leading venues worldwide, so others may see how our innovative approach is working.
Together we can move GBM from terminal to treatable. Powered by patients.