When Liam was born we never could’ve imagined what was going to come next. The minute we got his diagnosis of diffuse hyperinsulinism everything changed. At 5 weeks old he had 98% of his pancreas removed and a feeding tube placed. As parents we were ready to learn everything we needed to, while also being scared, anxious, and happy to have our baby finally home after two months. Every single day is a struggle. Every meal is a struggle. With every finger stick we wait anxiously for a good number, if not we always have a game plan. Research for this condition is so incredibly important because Liam’s future is so unknown. His little bit of pancreas that’s left is working as hard as it can but it’s still so unpredictable and complicated. Liam on the other hand is sweet and funny. He is also becoming aware of his symptoms when his blood sugar is off. It would be completely heartbreaking if he wasn’t such an amazing little boy.
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