Team Rett FundRacers will be raising money for research in hopes that the devestating effects of Rett Syndrome can be reversed! It will also be investing in programing and events to enhance the lives of those living with Rett Syndrome today.
Rett syndrome is a unique developmental disorder caused by mutations on the X chromosome on a gene called MECP2. A rare disease, the incidence of Rett syndrome is about 1 in 10,000. The course of Rett syndrome, including the age of onset and severity varies from child to child. As the syndrome progresses, most children lose purposeful use of their hands and the ability to speak. Other symptoms may include loss of motor skills, onset of breathing and cardiac irregularities, seizures, digestive problems, scoliosis, and tremors. Please support Team Rett in its efforts to fund research that may lead to a cure for Rett syndrome and for improving lives of those living with Rett Syndrome today!
For more information about RSAM, please visit our website at www.rettsyndromemass.org