Sawyer LOVES birthdays. We have a birthday party every few months for her, cake and all. She loves celebrating everyone’s birthdays and saying “Happy Birthday” in her sweet, excited voice to everyone she comes in contact with. She’s the life of any party and we hope she’ll continue to be. As parents of a terminally ill child we’re not a fan of her birthdays. They’re just a reminder of anxiety and fear that we live with each day. They mean another year closer to losing her. We have hope that Sawyer might be on a different path as last year she received a treatment that we hope will help. But the truth is we just don't know yet about any results from this experimental treatment.
Sawyer’s 4th Birthday is on January 18th. We’ll be celebrating by giving her the Royal Treatment on her Make-A-Wish trip to Disney (Stay tuned for her big surprise). We also want to involve all of our #SawyerSupporters by imploring you to help us in our efforts towards a treatment or cure for Sanfilippo Syndrome. We want other parents to experience this small feeling of hope that we have. The reason Sawyer even has had this opportunity was thanks to familes and Foundation raising funds for so many years. Our fight doesn’t stop just because Sawyer was included in a clinical trial. Our fight increases. This is just the start of a lifelong battle for her, and efforts for the so many kids dying slowly and painfully from this awful disease. We’re running out of time. Trials are limited and were committed to fight for a Cure and the best quality of life for children, including our Sawyer. Will you journey alongside of us, because every bit helps?
Over the next week up until midnight on Sawyer’s birthday, January 18th, we are hoping to raise $10,000 toward finding a cure…toward believing in happier birthdays ahead for Sawyer and her friends so that she can keep wishing everyone: “Happy Birthday”.
Your support and generosity carries us through our dark, trying, hard days. Thank you in advance for being part of Sawyer’s online birthday campaign, for donating, and helping us to spread this birthday wish by “liking” it and “sharing” it with your friends.
Help give Sawyer her Birthday Gift of Life at www.SawyerTurns4.com
Our deepest thanks,
Brittany and the Lagarde Family
All donations go directly to Cure Sanfilippo Foundation (Tax ID: 46-4322131), a non-profit 501c3 organization and will be used to fund research for the treatment of Sanfilippo Syndrome. All donations are tax deductible. For more information on the Cure Sanfilippo Foundation, please visit www.CureSFF.org.