On July 15, 2016, Elodie was born with a rare genetic disorder called Epidermolysis Bullosa ("EB"). This disease means that Elodie is missing a critical protein that helps bind the layers of the skin together, making her skin extremely fragile. Her skin will break or blister frequently, with everyday contact. There are no cures or even treatments for this disease right now. The only option is to care for her is through extensive bandages that are changed twice daily. Despite all of this and the resulting pain and discomfort from her disease, Elodie remains a happy, well-adjusted toddler. She inspires us to fight every day to bring her a much needed treatment, and ultimately a cure.
We invite you to take the plunge with us and go all-in on the fight to #healEB and bring Elodie a much needed cure. All donations will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and ultimately curing EB.
Visit plungeforelodie.org for more information.