Join us in raising awareness and funds for research for Juvenile Myositis! Both Lydia and Maddie have been diagnosed with this rare, incurable, potentially life-threatening disease.
JM, which can be triggered by something as simple as a virus or sun exposure, attacks a child's skin and muscles, and, if left untreated, could progress to other organs in the body. Thanks to aggressive treatment (including weekly chemotherapy, high doses of steroids, IVIG infusions, and other daily oral meds), our girls are thriving. BUT, treatment introduces a whole array of side effects and emotional challenges that little girls shouldn't have to be dealing with.
And yet, despite the trials our girls will have already faced in their short lives, their resilience, strength, and continued joy has astounded me. They are such warriors through all of the shots, IVs, pills, doctor visits, side effects, and daily sunscreen and other sun protection.
So how can you help?
Join us at the Inaugural Annual Philadelphia Walk Strong to Cure JM™ Family Fun Event and Fundraising Walk!
The walk is May 4, 2019 and begins and ends at Independence National Historical Park, 143 S 3rd St, Philadelphia, PA 19106.
Registration opens 4:00 PM (on-site registration available).
Walk Festivities begin 5:00 PM. This event is free and open to the public.
If you can't walk and would like to donate to support our team, that would be awesome! Any amount gets kids like ours closer to faster diagnosis and better, more effective treatment!
Contact email@example.com for more information.
All proceeds benefit Cure JM Foundation, a 501(c)(3) nonprofit organization with the mission to find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.
Through this walk Cure JM families, friends, and supporters are coming together to raise $20,000 for much-needed Juvenile Myositis research, including research Cure JM is funding right here at Children's Hospital of Philadelphia's Center for Applied Genomics.
Juvenile Myositis (JM), is a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. There are currently no FDA-approved treatments and no cure….YET!
But that’s where you come in! Thanks to friends and family like you, Cure JM has made extraordinary progress in drug-development and genetic discovery. But, the reality is that we simply must move faster and in more areas of research than ever before and we need your support.
Every donation goes straight to Cure JM, and together Cure JM friends and families have raised over $12 million for JM research.
Can we count on you to help today?