Our beloved Molly passed away due to bowel disease on February 22nd of this year at the age of 30. Molly was the sun around which our world revolved. Losing her has been a terrible blow to our family. We miss her sweet little soul every day. Re-building our life without her is no easy task, as our hearts are broken.
Many have asked whether Peter would run for Team CdLS again this year. It wasn’t a difficult choice for Peter. In fact, this race means more to us than ever. Raising money for the CdLS Foundation is a labor of love and a wonderful way to honor our beautiful daughter.
We have so many unanswered questions about Molly’s health issues. Research funded by the Foundation is ongoing to find answers to some of our questions. Why do some kids with CdLS have such terrible gastrointestinal issues? Why do so many of our kids have to suffer daily with an intestinal system that just won’t function as it should? How can we keep then more comfortable? What causes so many of our kid’s bowels to suddenly twist? This is one of the most common causes of death for this population. Could gene therapy starting at a very young age prevent this progression of disease? Is there a yet undiscovered medication or a currently un-researched special diet that might help lessen symptoms? We MUST find answers to these complex questions.
We want to help those with CdLS and their families have a better quality of life.
The answers are out there. Let’s go raise a bunch of money to find them!